The Alliance Against Rare Diseases
The National Organization
Against Rare Cancers

 

Providing Hope...

   Taking Action...

        For the Forgotten...

 

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TAAERD
About TAAERD

Mission
The mission of The National Organization Against Rare Cancers is to advocate for the rapid development of new and better medicines to treat people with rare cancers and other life-threatening ultra-rare diseases.  

Vision
The vision of The National Organization Against Rare Cancers is to mobilize the millions of patients around the world who by fate have found themselves with a medical diagnosis of an extraordinarily rare disease which, if left untreated, will threaten their life.  Individually, only so much can be done.  Collectively, our community will tell the powers-that-be that much more needs to be done, and that the system must change to allow new agents to be developed for our illnesses. 

History
The National Organization Against Rare Cancers was incorporated in the state of Maryland on March 13, 2006. The organization is in the process of applying to the federal government for 501(c)(3) status as a social welfare organization.

Board of Directors
Mark Thornton, MD, PhD; Damascus, MD
Gary Tomei, Esq; New York City, NY
Noah Kimmerling ; New York City, NY
Rose Birtley; Briarwood, NY
Patricia Thornton; Damascus, MD
Peter Tork (Honorary Member); New York City, NY

TAAERD Coaliation Organizations
SFA
TAAASPS
Robert Urich Fund
Chordoma 
Desmoid Tumor Research Foundation
Eye Cancer Network
Mesothelioma

Mesothelioma Information

Thyca
Northwest Sarcoma Foundation
National Leiomyosarcoma Foundation
Asbestos.com
Liddy Shriver Sarcoma Initiative
MesoLink
 
Ewings Sarcoma Alliance
Danis Foundation
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