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Mission
The mission of The National Organization Against Rare Cancers is
to advocate for the rapid development of new and better
medicines to treat people with rare cancers and other
life-threatening ultra-rare diseases.
Vision
The vision of The National Organization Against Rare Cancers is
to mobilize the millions of patients around the world who by
fate have found themselves with a medical diagnosis of an
extraordinarily rare disease which, if left untreated, will
threaten their life. Individually, only so much can be
done. Collectively, our community will tell the
powers-that-be that much more needs to be done, and that the
system must change to allow new agents to be developed for our
illnesses.
History
The National Organization Against Rare Cancers was
incorporated in the state of Maryland on March 13, 2006. The
organization is in the process of applying to the federal
government for 501(c)(3) status as a social welfare
organization.
Board of Directors
Mark Thornton, MD, PhD; Damascus, MD
Gary Tomei, Esq; New York City, NY
Noah Kimmerling ; New York City, NY
Rose Birtley; Briarwood, NY
Patricia Thornton; Damascus, MD
Peter Tork (Honorary Member); New York City, NY
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